Patrick C. Shih

The goal of this study is to investigate the association between chronic non-cancer pain (CNCP) and mild cognitive impairment (MCI)/Alzheimer’s disease and related dementias (ADRDs) development among adults aged ≥50 using administrative claims data from a national commercial health insurance company during 2007–2017. To reduce selection bias, propensity-score matching was applied to select comparable CNCP and non-CNCP patients. Time-dependent Cox proportional-hazards regressions were conducted to estimate the hazard ratios (HRs) of incident MCI/ADRDs. Of 170,900 patients with/without CNCP, 0.61% developed MCI and 2.33% had been diagnosed with ADRDs during the follow-up period. Controlling for potential confounders, CNCP patients had a 123% increase in MCI risk (HR = 2.23; 95% CI = 1.92–2.58) and a 44% increase in ADRDs risk (HR = 1.44; 95% CI = 1.34–1.54) relative to …

Driven by the vision of future responsive environments, where everyday surroundings can perceive human behaviors and respond through intelligent robotic actuation, we propose Wizard of Props (WoP): a human-centered design workflow for creating expressive, implicit, and meaningful interactions. This collaborative experience prototyping approach integrates full-scale physical props with Mixed Reality (MR) to support ideation, prototyping, and rapid testing of responsive environments. We present two design explorations that showcase our investigations of diverse design solutions based on varying technology resources, contextual considerations, and target audiences. Design Exploration One focuses on mixed environment building, where we observe fluid prototyping methods. In Design Exploration Two, we explore how novice designers approach WoP, and illustrate their design ideas and behaviors. Our …

Despite the importance of daily stress to individuals' health and wellbeing, few studies have explored where stress happens in real time, that is, dynamic stress processes in different spaces. As such, stress interventions rarely account for the environment in which stress occurs. We used mobile phone based ecological momentary assessment (EMA) to collect daily stress data. Thirty-three participants utilized a mobile-phone-based EMA app to self-report stressors as they went about their daily lives. Geographic coordinates were automatically collected with each stress report. Data from thematic analysis of stressors by location (home, work, work from home, other) were used to determine whether certain stressors were more prevalent in certain environments. Nine daily stressors significantly differed by location. Work-related stress was reported more often at work. Pets, household chores, sleep, and media-related …

Motivation: To meet the needs of people with dementia, there is a growing demand for interactive products. On the other hand, art therapy promotes creativity and compassion in this population. However, traditional therapy has accessibility and cost challenges. Therefore, investigating digital art therapy as an alternative is needed.Objectives: This study discusses digital art therapy's role for people with dementia as a non-pharmacological intervention. It identifies emotional and physical needs using a framework and emphasize the value of creative digital art therapy.Methodology: This study reviews research on art therapy for dementia and a psychophysiological experiment to contrast traditional and digital art therapy is suggested as part of the study's methodology.Findings: Digital art therapy improves feelings, reduces anxiety, and boosts social interaction in this population as it has impacts on their mental and physical well-being.Impact: Using creative digital art therapy as part of dementia treatment has important implications and calls for more research.Novelty: This paper suggests an experiment and presents a framework for using digital art therapy to meet the needs of people with dementia.

ObjectiveWe assessed the feasibility and acceptability of using BACtrack Skyn wearable alcohol monitors for alcohol research in a college student population.MethodsWe enrolled n = 5 (Sample 1) and n = 84 (Sample 2) Indiana University undergraduate students to wear BACtrack Skyn devices continuously over a 5-day to 7-day study period. We assessed feasibility in both samples by calculating compliance with study procedures, and by analyzing amount and distributions of device output [e.g., transdermal alcohol content (TAC), temperature, motion]. In Sample 1, we assessed feasibility and acceptability with the Feasibility of Intervention Measure (FIM) scale and the Acceptability of Intervention Measure (AIM) scale.ResultsAll participants were able to successfully use the alcohol monitors, producing a total of 11,504 h of TAC data. TAC data were produced on 567 days of the 602 total possible days of data …

In this paper, we introduce the Analysis Platform for Risk, Resilience, and Expenditure in Disasters (APRED)—a disaster-analytic platform developed for crisis practitioners and the economic developers across the United States. APRED provides practitioners with a centralized platform for exploring the disaster resilience and vulnerability profiles of all counties across the United States. The platform comprises five sections including:(1) Disaster Resilience Index,(2) Business Vulnerability Index,(3) Disaster Declaration History,(4) County Profile, and (5) Storm History sections. We further describe our end-to-end human-centered design and engineering process that involved contextual inquiry, community-based participatory design, and rapid prototyping with the support of US Economic Development Administration representatives and regional economic developers across the United States. Findings from our study revealed that distributed cognition, content heuristic, shareability, and human-centered systems are crucial considerations for developing data-intensive visualization platforms for resilience planning. We discuss the implications of these findings and inform future research on developing sociotechnical visualization platforms to support resilience planning.

Epilepsy is a common chronic neurological disease. People with epilepsy (PWE) and their caregivers face several challenges related to their epilepsy management, including quality of care, care coordination, side effects, and stigma management. The sociotechnical issues of the information management contexts and challenges for epilepsy care may be mitigated through effective information management. We conducted 4 focus groups with 5 PWE and 7 caregivers to explore how they manage epilepsy-related information and the challenges they encountered. Primary issues include challenges of finding the right information, complexities of tracking and monitoring data, and limited information sharing. We provide a framework that encompasses three attributes — individual epilepsy symptoms and health conditions, information complexity, and circumstantial constraints. We suggest future design implications to …

Public stigma on the Human Immunodeficiency Virus (HIV) affects the physical and psychological wellbeing of those living with the condition in a severe way. There is work around the design of technology for medication adherence and HIV treatment. Yet, there is still a lack of empirical research that investigates how people could cope with stigma more effectively using technology. Thus, we obtained data from co-design workshops conducted remotely from the U.S. with 25 people living with HIV. Our findings foreground key needs and values via the discussion of features and functionality of speculative co-designed technologies that would allow people to leverage key stigma coping strategies. Based on these insights, we forward design implications for social media, which is the most common type of technology that people living with HIV currently use to cope with public stigma.

This study examined the concordance between accelerometry-measured and self-reported physical activity (PA) and sedentary time in adults with autism. Twenty-four participants wore an ActiGraph GT3X + accelerometer for seven consecutive days and completed the International Physical Activity Questionnaire-Short Form (IPAQ-SF) on the last day of their study participation. Bland-Altman plots assessed the magnitude of agreement between the two measures. Nearly 80% of the participants accumulated the recommended ≥ 150 min of moderate to vigorous PA (MVPA)/week, but were also sedentary for over nine hours/day according to accelerometry data. Findings showed that adults with autism tended to overreport MVPA (b = 1.606, p < 0.01) and underreport sedentary time (b = 1.161, p = 0.03) via the IPAQ-SF, as compared to objective measurements.

Background: Daily stressors are associated with cognitive decline and increased risk of heart disease, depression, and other debilitating chronic illnesses in midlife adults. Daily stressors tend to occur at home or at work and are more frequent in urban versus rural settings. Conversely, spending time in natural environments such as parks or forests, or even viewing nature-themed images in a lab setting, is associated with lower levels of perceived stress and is hypothesized to be a strong stress “buffer,” reducing perceived stress even after leaving the natural setting. However, many studies of daily stress have not captured environmental contexts and relied on end-of-day recall instead of in-the-moment data capture. With new technology, these limitations can be addressed to enhance knowledge of the daily stress experience.Objective: We propose to use our novel custom-built Stress Reports in Variable Environments (STRIVE) ecological momentary assessment mobile phone app to measure the experience of daily stress of midlife adults in free-living conditions. Using our app to capture data in real time will allow us to determine (1) where and when daily stress occurs for midlife adults,(2) whether midlife adults’ daily stressors are linked to certain elements of the built and natural environment, and (3) how ecological momentary assessment measurement of daily stress is similar to and different from a modified version of the popular Daily Inventory of Stressful Events measurement tool that captures end-of-day stress reports (used in the Midlife in the United States [MIDUS] survey).Methods: We will enroll a total of 150 midlife adults living in greater …

Patients with complex conditions and treatment plans often find it challenging to communicate with multiple providers and to prioritize various management tasks. The challenge is even greater for patients with discordant chronic comorbidities (DCCs), a situation where a patient has conditions that have unrelated and/or conflicting treatment plans. We present results that highlight these challenges from two studies. The first is a photo-elicitation study with patients with DCCs (n = 16), and the second is an interview study of health providers (n = 8). In an attempt to address these challenges, we introduce a model that captures the different stages of synthesizing information about symptoms and suggested medical treatments, decision making around possible treatment plans including prioritizing different portions of the plan, and implementing their plan. This model is iterative, such that changes in a plan can impact …

In this paper, we draw inspiration from the Discordant Chronic Comorbidity Care (DC) model. The model recognizes the complexities of DCCs and incorporates key strategies for assessing and addressing the complexities of DCCs care. We worked with user experience design experts over several design sprints to come up with a conceptual design. It became clear early on that because of the changing DCCs care needs, there is no one-size-fits-all solution for DCCs needs. Thus, the effective care of DCCs requires a holistic approach. The holistic approach involves designers collecting multiple individual tools and mapping those tools to specific needs for DCC care and treatment, which ultimately results in the creation of an ecosystem. We discussed how this ecosystem may be optimized and personalized using machine learning to address individual DCCs needs. Furthermore, putting together these multiple sets …

African Americans/Blacks continue to be underrepresented as participants in Alzheimer’s Disease and related dementia (ADRD) and brain research. Numerous challenges such as lack of information about the Alzheimer’s Disease and related dementia (ADRD), socioeconomic barriers, historical and systemic racism, and distrust of research goals and processes persist in research participation. Research approaches tend to be more recruitment oriented rather than partnership driven that do not address these challenges. As a result, community engagement approaches are increasingly being recognized as a means of building trust and creating new pathways for participation in ADRD studies. This poster focuses on the preliminary work of the Collaborative on Aging Research and Engagement (CARE) --- a community academic partnership comprising the CARE Advisory Team (a community action team of 10 …

Virtual reality (VR) has seen increased use for training and instruction. Designers can enable VR users to gain insights into their own performance by visualizing telemetry data from their actions in VR. Our ability to detect patterns and trends visually suggests the use of data visualization as a tool for users to identify strategies for improved performance. Typical tasks in VR training scenarios are manipulation of 3D objects (e.g., for learning how to maintain a jet engine) and navigation (e.g., to learn the geography of a building or landscape before traveling on-site). In this paper, we present the results of the RUI VR (84 subjects) and Luddy VR studies (68 subjects), where participants were divided into experiment and control cohorts. All subjects performed a series of tasks: 44 cube-matching tasks in RUI VR, and 48 navigation tasks through a virtual building in Luddy VR (all divided into two sets). All Luddy VR subjects used VR gear. RUI VR subjects were divided across three setups: 2D Desktop (with laptop and mouse), VR Tabletop (in VR, sitting at a table), and VR Standup (in VR, standing). In an intervention called “Reflective phase,” the experiment cohorts were presented with data visualizations, designed with the Data Visualization Literacy Framework (DVL-FW), of the data they generated during the first set of tasks before continuing to the second part of the study. For Luddy VR, we found that experiment users had significantly faster completion times in their second trial (p = 0.014) while scoring higher in a mid-questionnaire about the virtual building (p = 0.009). For RUI VR, we found no significant differences for completion time and accuracy …

Background Physical activity (PA) has an impact on physical and mental health in neurotypical populations, and addressing these variables may improve the prevalent burden of anxiety in adults with autism spectrum disorder (ASD). Gamified mobile apps using behavior change techniques present a promising way of increasing PA and reducing sedentary time, thus reducing anxiety in adults with ASD. Objective This study aimed to compare the effectiveness of a gamified and behavior change technique–based mobile app, PuzzleWalk, versus a commercially available app, Google Fit, on increasing PA and reducing sedentary time as an adjunct anxiety treatment for this population. Methods A total of 24 adults with ASD were assigned to either the PuzzleWalk or Google Fit group for 5 weeks using a covariate-adaptive randomization design. PA and anxiety were assessed over 7 days at 3 different data collection periods (ie, baseline, intervention start, and intervention end) using triaxial accelerometers and the Beck Anxiety Inventory. Group differences in outcome variables were assessed using repeated-measures analysis of covariance, adjusting for age, sex, and BMI. Results The findings indicated that the PuzzleWalk group spent a significantly longer amount of time on app use compared with the Google Fit group (F2,38=5.07; P=.01; partial η2=0.21), whereas anxiety was unfavorably associated with increases in light PA and decreases in sedentary time after intervention (all P<.05). Conclusions Further research is needed to clarify the determinants …

Simple Summary Enrichment is important for supporting the well-being of captive animals. Enrichment increase animal quality of life through encouraging natural behaviours. As enrichment is shifting to a more centered role in animal care, technology is becoming increasingly accessible and is becoming embedded in animal enrichment in creative ways. This review explores the trends in technology usage in animal enrichment studies. Through pulling the past decade of technology enrichment work together, we discuss gaps such as needing to include a larger variety of species (extending passed mammals), ensuring enrichment designs focus primarily on the senses an animal uses to interact with the world rather than human senses, and encouraging similar study designs across animal contexts to allow for streamlined comparisons. Abstract Environmental enrichment is adding complexity to an environment that has a positive impact on a captive animal as a necessity of care. Computing technology is being rapidly weaved throughout the space in both enrichment devices as well as evaluating enrichment outcomes. In this article, we present a scoping review of 102 captive animal enrichment studies and propose a contextual lens for exploring current practices. We discuss the importance of directed growth in species inclusion, transitioning beyond anthro-centric designs, and utilizing shared methodologies.

Millions of Americans forego medical care due to a lack of non-emergency transportation, particularly minorities, older adults, and those who have disabilities or chronic conditions. Our study investigates the potential for using timebanks—community-based voluntary services that encourage exchanges of services for “time dollars” rather than money—in interventions to address healthcare transportation barriers to seed design implications for a future affordable ridesharing platform. In partnership with a timebank and a federally qualified healthcare center (FQHC), 30 participants completed activity packets and 29 of them attended online workshop sessions. Our findings suggest that promoting trust between drivers and riders requires systems that prioritize safety and reliability; yet, there were discrepancies in the ability of the timebank and FQHC to moderate trust. We also found that timebank supports reciprocity, but …

Working with organs and extracted tissue blocks is an essential task in many medical surgery and anatomy environments. In order to prepare specimens from human donors for further analysis, wet-bench workers must properly dissect human tissue and collect metadata for downstream analysis, including information about the spatial origin of tissue. The Registration User Interface (RUI) was developed to allow stakeholders in the Human Biomolecular Atlas Program (HuBMAP) to register tissue blocks—i.e., to record the size, position, and orientation of human tissue data with regard to reference organs. The RUI has been used by tissue mapping centers across the HuBMAP consortium to register a total of 45 kidney, spleen, and colon tissue blocks, with planned support for 17 organs in the near future. In this paper, we compare three setups for registering one 3D tissue block object to another 3D reference organ (target) object. The first setup is a 2D Desktop implementation featuring a traditional screen, mouse, and keyboard interface. The remaining setups are both virtual reality (VR) versions of the RUI: VR Tabletop, where users sit at a physical desk which is replicated in virtual space; VR Standup, where users stand upright while performing their tasks. All three setups were implemented using the Unity game engine. We then ran a user study for these three setups involving 42 human subjects completing 14 increasingly difficult and then 30 identical tasks in sequence and reporting position accuracy, rotation accuracy, completion time, and satisfaction. All study materials were made available in support of future study replication, alongside videos …

There are over three million people living with epilepsy in the U.S. People with epilepsy experience multiple daily challenges such as seizures, social isolation, social stigma, experience of physical and emotional symptoms, medication side effects, cognitive and memory deficits, care coordination difficulties, and risks of sudden unexpected death. In this work, we report findings collected from 3 focus groups of 11 people with epilepsy and caregivers revisionand 10 follow-up questionnaires. We found that these participants feel that most people do not know how to deal with seizures. To improve others' abilities to respond safely and appropriately to someone having seizures, people with epilepsy and caregivers would like to share and educate the public about their epilepsy conditions, reduce common misconceptions about seizures and prevent associated stigma, and get first aid help from the public when needed …

PURPOSE: To examine the concordance between accelerometry-measured and self-reported PA and sedentary time in adults with ASD.METHODS: Twenty-four adults with ASD wore GT3X+ tri-axial accelerometers (ActiGraph, Pensacola, FL) for seven consecutive days and completed the International Physical Activity Questionnaire-Short Form (IPAQ-SF) on the last day of their study participation to estimate PA and sedentary time. The standardized IPAQ-SF guidelines and commonly used ActiGraph data cleaning principles were employed to process subjective and objective measurements, respectively. Paired sample t-tests and Bland-Altman plots were utilized to assess the difference and magnitude of agreement between the two measures.RESULTS:(1) Nearly 80% of the participants accumulated the recommended≥ 150 minutes of moderate to vigorous PA (MVPA) while they were also highly sedentary (593 …